Hi everyone,
I have been reading this forum for about 2 months now, I only just registered so that I can post how I have been going getting rid of this condition. I am only 23 years old.
I first got symptoms from prostatitis in about september 2003. The symptoms I got were pain in my right testicle and gastro (stomach churning). I got this for a month or so and then it went away. The doctor I saw gave me allergy tablets but I dont think they were the reason it went away
Around the same time last year the symptoms came back, this time they didn't go away and they got worse and worse, I couldnt concentrate at work, the testicle pain was getting worse, my stomach felt really sick, The pains in my pelvis got worse, some nights I would wake up in pain. I saw 3 GP's who got urine tests which came up fine. they didn't know what was wrong. It effected my sex life quite bad, libido was gone, I would lose my erections halfway through sex and get bad stomach pains/cramps. I had just gotten a new girlfriend and she kept thinking she was the reason no matter how much I told her she wasn't. I went through some serious depression, I had no idea how to get rid of this thing. I starting to believe this would ruin my life and didn't want to live like this. I finally got referred to a urologist who told me I had prostatitis and put my on a long course of antibiotics. The symptoms went away and I felt great, occasionally I would feel slight niggles but it was basically gone. As soon as I went off the antibiotics.. the symptoms came back. I went back on more antibiotics however this time it only kept the symptoms from getting too bad.
Then I found this site. I was happy to have found so much information about what I have as it seems the medical world knows nothing about it.
I straight away got off the antibiotics started doing stretches, ordered the headache in the pelvis book and ordered some Quercetin. While I waited for the book to arrive I did lots of stretches, and started running (for the last 4 years I did a lot of weight training, no running really) Things improved slightly and the symptoms kept at a bearable level even off the antibiotics. I knew now that it was not an infection. I was determined to get rid of this.
My sex life has improved, and my libido is better. The book arrived and the any accredited quercetin product did aswell. I have only had the any accredited quercetin product for about 5 days but I am feeling ok. I think the any accredited quercetin product is having an effect but I can't be totally sure cause I am doing quite a few things. I have been doing the stretches in the book aswell. I havent done any PT sessions, I dont even know of anyone in Melbourne that specialises in that. I am hoping I can get rid of this without the PT sessions. I am definately not cured yet, I still have the stomach churning but everything is not as bad. Its as a acceptable level.
I will update this thread in 2 months time and let you know of my progress.
Current regime:
Running for 20 minutes 3 times a week, stretch after running.
Stretching sessions 2 times a day, morning and night.
Quercetin (1 tablet in the morning and 1 tablet in the evening)
Concentrate on keeping my stomach relaxed.
Sorry for such a long winded message, but I just want to help others. I believe I am on the right track.
My Progress
My Progress
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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Carlton Higgins
I'm not a doctor, but I think the reason the antibiotics were initially working, is that they have a strong anti-inflammatory effect on the body. People with chronic sinusitis also get relief from antibiotics, not because the infections is going away, but because the sinuses have less swelling.
I'm one of the guys who believes that chronic prostatitis/CPPS is not caused by bacteria, but is either a neuro-muscular issue or an auto-immune problem -sometimes both.
I'm glad to hear your are doing well. keep up the good work!
I'm one of the guys who believes that chronic prostatitis/CPPS is not caused by bacteria, but is either a neuro-muscular issue or an auto-immune problem -sometimes both.
I'm glad to hear your are doing well. keep up the good work!
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
I'm glad running is working for you.
I've got some questions about that.
I used to be an avid jogger. Sometimes, when my pain symptoms are near nill, I will try jogging again. But since I have developed CPPS, I've found that jogging results in a flare-up the next day. I would like to go back to jogging. Perhaps I'm not stretching enough afterwards?
How much stretching do you do after you jog, and what kinds of stretches do you do?
I've got some questions about that.
I used to be an avid jogger. Sometimes, when my pain symptoms are near nill, I will try jogging again. But since I have developed CPPS, I've found that jogging results in a flare-up the next day. I would like to go back to jogging. Perhaps I'm not stretching enough afterwards?
How much stretching do you do after you jog, and what kinds of stretches do you do?
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
I believe the running has helped quite a bit, I think it helps with blood flow which may be the reason that I had the erection problems. I stretch for about 10 - 15 minutes afterwards. The stretches I do are aimed at my groin and pelvis. Basically, stretch like you are aiming to eventually do the splits =]. To stretch your stomach, lay flat on the ground face down and push up with your arms and straighten them. theres a couple of others you can do but its hard to explain over without pictures.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Anti-biotics CAN have some anti-inflammatory effects, and they can also have a good placibo effect at the beginning too. As you no doubt have read, there is a strong psychological component in the tension cycle that keeps chronic prostatitis / chronic pelvic pain syndrome going, and any medication that you think might be helping you would certainly improve your state of mind, and hence, your chronic prostatitis / chronic pelvic pain syndrome symptoms.
As far as jogging helping you, it can certainly improve blood flow, muscle tone, and reduce your stress levels too, which are all good for chronic prostatitis / chronic pelvic pain syndrome symptoms. If you find you get flareups after too much jogging, just pull it back a little. And definitely stretch thoroughly before doing exercise involving the pelvic muscles (pretty much all exercise).
I used to have stomach aches too, although a lot of mine were from serious tension and anxiety (I was diagnosed with IBS). This can make you feel fix too. But I have also experienced bad stomach aches when my testicle pain gets really bad.
I hope you can solve your problems without PT, but if not, don't worry about it. Most of my PT work now is done externally at home with a Theracane and good heat. And the internal work is not that bad once you get over the fears.
Mike
As far as jogging helping you, it can certainly improve blood flow, muscle tone, and reduce your stress levels too, which are all good for chronic prostatitis / chronic pelvic pain syndrome symptoms. If you find you get flareups after too much jogging, just pull it back a little. And definitely stretch thoroughly before doing exercise involving the pelvic muscles (pretty much all exercise).
I used to have stomach aches too, although a lot of mine were from serious tension and anxiety (I was diagnosed with IBS). This can make you feel fix too. But I have also experienced bad stomach aches when my testicle pain gets really bad.
I hope you can solve your problems without PT, but if not, don't worry about it. Most of my PT work now is done externally at home with a Theracane and good heat. And the internal work is not that bad once you get over the fears.
Mike
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Update
Hi everyone, its been almost 2 months since my first post on trying to get rid of this thing. The first month I concentrated a lot on getting my fitness level up and do my stretches. I continued to have my Quercetin tablets. The last month I only went to the gym once or twice a week and did stretches here and there. I have stayed on my any accredited quercetin product tablets and this has kept my stomach at bay and is about 85 percent better.
In the first month, I had quite a few ups and downs days but then the pains started to fade. The last month the stomach pains havent been a problem, almost unnoticible at times. I dont get the pains in my testicle anymore and sex doesnt seem to flair up my condition as much anymore. I had a period where I had ED which I am getting over now, had a few stange things going on downstairs like sometimes I would get watery semen, or not much semen, sometimes it would be fine however it would be difficult to get erections, and my libido was pretty bad. I have gotten a lot better in the last week.
I have now started to do light weights again (I used to weight train a lot). I am feeling a lot better, I dont get depressed as much anymore. My life finally feels like its getting better. I havent had any PT sessions and hopefully I will get rid of this thing by the end of the year without the need for them. I will continue to take my Quercetin tablets and hope that when I do choose to stop taking them, my stomach doesnt flair up again.
I hope my story helps others, I am not over this, and I may not be for a while but I feel I am getting better, and I hope everyone else on here can get better too. I recommend the stretches from AHIP, Quercetin tablets twice a day, and get your fitness level up, run a few times a week.
Good luck everyone, I will post another update in a month or so.
PS: Forgot to mention, 1. get off the coffee, 2. dont drink much alcohol.
In the first month, I had quite a few ups and downs days but then the pains started to fade. The last month the stomach pains havent been a problem, almost unnoticible at times. I dont get the pains in my testicle anymore and sex doesnt seem to flair up my condition as much anymore. I had a period where I had ED which I am getting over now, had a few stange things going on downstairs like sometimes I would get watery semen, or not much semen, sometimes it would be fine however it would be difficult to get erections, and my libido was pretty bad. I have gotten a lot better in the last week.
I have now started to do light weights again (I used to weight train a lot). I am feeling a lot better, I dont get depressed as much anymore. My life finally feels like its getting better. I havent had any PT sessions and hopefully I will get rid of this thing by the end of the year without the need for them. I will continue to take my Quercetin tablets and hope that when I do choose to stop taking them, my stomach doesnt flair up again.
I hope my story helps others, I am not over this, and I may not be for a while but I feel I am getting better, and I hope everyone else on here can get better too. I recommend the stretches from AHIP, Quercetin tablets twice a day, and get your fitness level up, run a few times a week.
Good luck everyone, I will post another update in a month or so.
PS: Forgot to mention, 1. get off the coffee, 2. dont drink much alcohol.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
that's great, flipsta, I'm glad you're doing better and know that you've got control of things. I have to suggest, however, that without some physical therapy, you may not be able to get 100 percent, or as I'm trying to do, even better than you were before.
i suggest trying to contact some female pelvic floor therapists and ask if they have any experience or knowledge in regards to male pelvic pain. ask them if they know how to treat trigger points - you know they learned about dr. travell and trigger points in pt school. you could ask them to read and take a look at the new edition of AHIP, which has diagrams of the pelvic floor and where most male internal trigger points arise.
but maybe you'll get 100 percent on your own without therapy, I don't know and don't want to discourage you. just don't be afraid to seek out and try to collaborate with a pt if you think it'll get you to the next level of recovery.
i suggest trying to contact some female pelvic floor therapists and ask if they have any experience or knowledge in regards to male pelvic pain. ask them if they know how to treat trigger points - you know they learned about dr. travell and trigger points in pt school. you could ask them to read and take a look at the new edition of AHIP, which has diagrams of the pelvic floor and where most male internal trigger points arise.
but maybe you'll get 100 percent on your own without therapy, I don't know and don't want to discourage you. just don't be afraid to seek out and try to collaborate with a pt if you think it'll get you to the next level of recovery.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Thanks for the update. 2 months with nothing but stretching is a remarkable improvement. Your ED early on was possibly related to your ups and downs and depression level. The stretches are doing a lot of things to your pelvic muscles; I find that my symptoms change a bit depending on what muscles are sore from my therapy. Also remember that you don't have to have a professional to do massage on your abdominals, perineum, lower back, thights, hamstrings, and buttocks. Those areas all contain trigger points that can cause pain.
I'm glad you are starting to feel better! Don't back off on your treatment. It should be a lifelong pursuit, and with luck, you won't ever have serious symptoms again!
Michael
I'm glad you are starting to feel better! Don't back off on your treatment. It should be a lifelong pursuit, and with luck, you won't ever have serious symptoms again!
Michael
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Nice sharing everyone !!
A question for you guys??
Any of you had episodes of numbness like feeling in their penis??
I had it a few times lasting for a couple minutes....but once it lasted for like 7 hours, which really scared me.
I started Flomax for 2 weeks, did not feel the numbness during. But after 4 days of being off the pill....it happened again for more than 3 hours, this was last Sunday. Yesterday monday did not feel it and today tuesday did not feel that yet, but it seems to happen more in the evenings, while at home resting.
But I still have the pressure in my rectum/anus area giving me the feeling that I need to have a BM and occasional burning in my penis especially after urinating. But thankfully all these symptoms have reduced for me since it all first started last January 05.
Any advice on that??
Thanks
MZ
Any of you had episodes of numbness like feeling in their penis??
I had it a few times lasting for a couple minutes....but once it lasted for like 7 hours, which really scared me.
I started Flomax for 2 weeks, did not feel the numbness during. But after 4 days of being off the pill....it happened again for more than 3 hours, this was last Sunday. Yesterday monday did not feel it and today tuesday did not feel that yet, but it seems to happen more in the evenings, while at home resting.
But I still have the pressure in my rectum/anus area giving me the feeling that I need to have a BM and occasional burning in my penis especially after urinating. But thankfully all these symptoms have reduced for me since it all first started last January 05.
Any advice on that??
Thanks
MZ
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
Yes, I've had the numbness feeling before. This was infrequent, however. Keep up your stretches, massages, and PT. If you've already made strides since January, you are on the right track!
Mike
Mike
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
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LightningTree
- Sage
- Posts: 623
- Joined: Sat Jul 03, 2004 6:50 pm
- Location: San Francisco, CA, USA
- Contact:
Yes Marki,
I had a little numbness a while ago. But nothing serious and it went away. Maybe it was just in my head.
But, when doing stretching, I found that doing a headstand caused my pelvis to go immediately and completely numb. I showed a neurologists the position. He said "don't do that anymore." I haven't had any problems with that since then.
I had a little numbness a while ago. But nothing serious and it went away. Maybe it was just in my head.
But, when doing stretching, I found that doing a headstand caused my pelvis to go immediately and completely numb. I showed a neurologists the position. He said "don't do that anymore." I haven't had any problems with that since then.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.