Actually no, I asked if he had the coronary angiogram and he said no. He said he’s only had echocardiogram, cardiac MRI, and chest X rays. I will tell him to ask his doctors about that.

Agreed, oftentimes the specialists will kick the patient back to the primary care doc if they don't find anything and if the primary care doctor doesn't search further, you could be on your own.

Sure, it's my brother actually, I'm sure he wouldn't mind.
My understanding of his symptoms is ...

Hey all - this forum has been a big help to me in the past, as I was able to control my pelvic floor pain when I couldn't find help anywhere else. With that said, I have recently had some family members who have also had some other (non-UCPPS) health issues where they have been struggling to get a ...

I have seen the same information. What do you think about others, like the Paul Saladino and Mark Sisson types? They also seem well researched to me (given I have little nutrition background and am not a doctor). Are they just quacks or does it just come down to everyone is different and reacts ...

I have basically fixed my CPPS, and a huge part was getting my diet straight, especially early on. After seeing how much influence my diet had on my wellbeing, I have spent a lot of time trying to learn more about it. The more I learn, the less I feel that we really know, with all the different diet ...

Still fixed! For me, its all about making sure to avoid sitting on cushiony surfaces and keep diet clean. Quercetin used as needed for minor flares, and occasional stretching for pelvic tightness.

No, I do not.

Happy to say I've been feeling very good the last few months. Minimal symptoms. The key I think is that I finally created my own cushion. All of the premade ones I tried off Amazon turned out to be too soft. For some reason, I benefit greatly from a cushion that is very stiff and doesn't deform ...

Hmm, I don't have any testicle pain but I do buy that they're related since my hip pain seems to come/go with my pelvic pain.

A couple questions:
- When I start to feel better, I tend to reduce quercetin to 500mg and eventually stop it all together. Is this a mistake? Should I be taking it forever ...

Well, I had a really good run. Minimal symptoms for a few months, but I think a combination of slipping up on diet (sugar, citrus,etc), sitting more than normal lately and neglecting to take quercetin has caused a remission. Sucks to have lost ground and be back in pain. Back on 1000mg a day of ...

Good news! Saw my general practitioner and he prescribed amitriptalyne. I’ve now been on it for 3 weeks or so and I definitely think it’s helping! I still can cause some irritation with bad foods but all in all I feel like I’m trending in the right direction again. 95% of burning pain gone and haven ...

Asked my uro for amitriptyline and he wouldn't prescribe it until I tried a treatment of antibiotics first. Off for a second opinion.

Any advice for convincing uros for this prescription in case this next one is also reluctant?

Definitely been helped by lidocaine cream. Tightness comes and goes once and awhile but it’s really not a concern anymore. No problems with urination other than a drop or two left afterwards.

Really the only thing I am still struggling with is a general burning sensation in my groin that’s ...

I ended up going with a standing chair. (Discussed in another topic) This seems to fix my issue, since by leaning or "perching" throughout the day. I am feeling much better and think I am making progress again!

I am dealing with a new symptom however which is that my groin is extremely sensitive ...

I've seen a lot of talk on this site about standing desks and donut cushions, but I just want to add another option that personally has helped me. I tried a standing desk to avoid sitting but found that standing all day was really hard on my hips and led to me sitting more than stand anyway. I ...