UCPPS - Prostatitis, Interstitial Cystitis Forum

I agree with the carld Greg, this is very inspiring stuff, well done.

You really do sound similar to me in your symptom profile and you are inspiring me to give the wheat/gluten elimination a real shot. In the past I've only half-heartedly done it and I did have some success.

Also I think I get ...

About the higher education thing: I presume people with lower education are more likely to have chronic prostatitis / chronic pelvic pain syndrome because of the tendency for anxiety disorders, which are very common in men with CP/CPPS/pelvic myoneuropathy, to disrupt the often stressful endeavour ...

Agreed there's probably an influence from both.

However I was thinking about this some more and multiple sclerosis also has a very high incedence in Scotland and I believe that studies have been done on this which directly correlate the rate to incedence to the distance from the equator where ...

That's pretty cool, and I buy the lack of sunlight as the causal factor more so than the temperature.

I know and agree from experience that colder temperatures do exacerbate symptoms but I'm not sure I believe that this is what caused them - after all in these cold/dark countries people tend to ...

Bit of a tangent but I've actually been wondering recently whether this board is overly biased with Brits and scots in particular.

There seems to be about 6 or more scots guys who post regularly out of a pool of what, maybe 50 guys who write regular updates here.

To me that seems a pretty high ...

Interesting stuff, if not exactly good news.

Surely this is an area where the pharma companies could get involved and actually provide something useful - a mastcell destroyer.

Tingling virtually anywhere is a well documented symptom of anxiety caused by reduced blood flow to the area.

It is not harmful.

The fact that you have been diagnosed with depression/anxiety, use words like "degenerative" and call yourself "very worried" show that there is a 99 percent certainty ...

Hi Clay,

I've had this for years now and to start with it was prostatitis, but now its CFS and really the pelvic pain is more of a background problem compared to the CFS symptoms.

The death spiral you mention sounds very familiar to me, and I go from periods where I am convinced I may not actually ...

Yeah I've got this, it's not bad but not worth the money, no groundbreaking stuff in it.
The jist of it is get a hobby, stop thinking about and researching your condition all the time, breath properly, eat right and do some focused relaxation.
Can't argue with any of that but it's nothing you ...

Yes I've noticed this heat, mainly in the abdomen when in pain. I do get a lot of pain in the legs but have never noticed they were also hot to the touch.

A couple of years ago I was so anxiety riddled, the pain and heat used to extend right up to my chest and my whole torso would feel like it was ...

I have had cloudy urine for about 10 years now and sample after sample has repeatedly come back with no sign of infection.

For years I simply could not accept this was the case, after all I was handing the doc on occasion a sample that looked like milk. "Is this a urine sample?" I was once asked ...

Hi Kevin,

I own this book but have not read it for a while. However I do absolutely support the premise that this all has its origin in the psyche.

However while I think I did get some short term benefit from reading the book I was somewhat put off by the fact that the book more than once mentions ...

I've found sitting straight, feet flat on the floor and hands on both thighs really helps, rather than getting caught in fidget mode, switching from cheek to cheek.

As you sit there imagine your butt cheeks spreading sideways every time you breath out and feel your body sink lower into the chair ...

Unfortunately while I sense the doctor means well, this thread has only served to worry me without offering any realistic solution to the problem.
To me this disease has been a constantly changing group of symptoms as pain has moved from my legs, to perineum, to sides, to lower back, to shins, to ...

Hi Glenn,
I've replied to you in the past and I just couldn't resist this time either since your story/syptoms sound so similar to mine.
In my non-professional opinion I also think you need cognitive therapy, and in addition to the Byron Katie book/tape mentioned above I would also recommend a book ...