UCPPS - Prostatitis, Interstitial Cystitis Forum

Caedar, I am learning more about this site and have done random searches today. Fortunately, I have read several of your comments and they all seem informative and enlightening. I was wondering if you allowed communication via e-mail. More so, to learn more about your treatment regimens and ...

Webslave would you mind informing me why you believe my symptoms are not characteristic of CPPS? Quite honestly I would prefer not to have a diagnosis of uncertain etiology which has an unpredictable response to treatment, such as CPPS. As you probably know, one of the most frustrating situations is ...

Thanks for the encouragement

Yes I did

Hello Guys,

I have posted several times before, but I was wondering, for those of you who experience the symptoms of ED, decreased libido and decreased penile sensitivity, has anything changed? Has anyone seen significant improvement and if so what was your treatment? I do experience pain in my ...

Xams2387 I read your post and wanted to respond. I have dealt with this for quite some time and have been following the message boards for about 2 years, hoping I would come across someone who understands my symptoms. This concept of chronic pelvic pain in the pelvis is a very complex diagnosis and ...

Thanks Mirogold for your response. I haven't checked this site in a while but out of desperation and in search for a little inspiration, I thought I'd check the site and see if anyone had posted. Fortunately you had and that gives me a bit more encouragement. I'd like to stay in contact if that's ok ...

THings still aren't better. I have resorted to Cipro and Quercetin along with trigger point therapy. I don't get any morning erections, decreased libido, and no pleasurable sensation from my glans penis at all. If I orgasm, it is felt from the area of my prostate. I am quite frustrated, but hopeful ...

Thank you figge for your response. It gives me so much hope to actually talk to someone who understands my symptoms. How long did it take before you saw a response? Which trigger point releases did you do?
Thank you again.

Webslave I must ask, why do you suggest my symptoms of erectile dysfunction falls outside the typical presentation of CPPS. It's rather confusing and even more disappointing. I have been struggling with the poor quality erections, decreased libido, and decreased sensation now for a year now. When I ...

It's been a year now of decreased sensitivity of the penis, poor to no erections and decreased libido. I don't see any light at the end of this tunnel, but so desperately want to remain hopeful. Has it improved for any of you and what did you do. My pain has improved but not the erectile dysfunction

I would like to ask a question for those of you who suffer from erectile dysfunction as a result of chronic pelvic pain syndrome. I have been dealing with this now for a year. I have marked decreased sensitivity, inability to maintain and get erections. This part of my relationship with my wife has ...

PPP I completely agree with your assessment of bed88. He appears to be focused on the engorged dorsal vein of his penis, but I too deal with erectile difficulty. NO morning erections, penis reaches only about 40 - 50 % tumescence, but I also experience the pain on the left side of my pelvis. Also as ...

Thank you for your response

I find it rather concerning that the book, "Headache in the Pelvis" does not mention erectile dysfunction as a symptom of CPPS. Is this really accepted as a symptom of is it considered mostly psychological? I know without a doubt that my erectile dysfunction has been episodic and only occurs when I ...