UCPPS - Prostatitis, Interstitial Cystitis Forum

Thanks C and Web. Good point about the sodium benzoate, it's an experiment I don't want to bother with. You're doing Gods work here.

I'd like to report that after 6 years I am consistently pain free. It was a 5 year battle where I almost lost everything at one point.

I'd like to point out something that helped me really take the final step toward consistent pain relief.
I stopped drinking diet sodas, and other diet products. I ...

This might be old news to some but Tanezumab is back in the pipeline and being expedited by the FDA. Apparently, the people whose arthritis got worse were ones where pain was completely eliminated and the patients thought they could go back to an active lifestyle.

I am pretty sure its being ...

Dr. Shoskes,

Cyclosporine seems to be a rather strange selection for treatment. I know of a very small study on it by a group in Oklahoma, they all had their symptoms return after use. Surely, a patient couldn't stay on it indefinitely although if you subscribe to the theory that if you can allow ...

Coldsteel you continued for 18 sessions! oh man that's wild the uro recommended you go on for so long with no improvement with it.

I did about 3 years ago. It was the pain centers first time doing this. It was done after my request and research. Interstingly, since then my physican said they have tried it on 3 other patients (women with IC). I don't know the results.

They hooked a wire up to my big toe and sent electric ...

Coldsteel: You misunderstood. Wise told me before he discovered a way to resolve his problem his symptoms were progressive.

Webslave: I get what you're saying. My pain is so much lower than it was 4 years ago, sure, but there is very little more I can do other than be patient and continue ...

I saw my Pain Management specialist yesterday, I scheduled an hour.

What are you thoughts about CPPS being progressive? Seems most on this board have stayed at initial pain or have gotten slightly or significantly better over time.

Dr. Wise had told me that his, after 20 years seemed to be ...

I had never heard of this "natural" remedy before.

I did a lot of research and it seems it works on some of mu receptors like opiates but is NOT an opiate per se. It has some analgesic properties.

I ordered some from a reputable dealer or at least one that seemed well put together and had ...

Yea I researched it a little, guess I was hoping for a more specific review from someone with CPPS. I particularly wonder if Hyoscyamine and Salicylate would alleviate the dysuria most men face with CPPS.

Anyone try Uribel? Only one mention of it when I searched and poster didn't say whether or not it helped.

http://www.uribelinfo.com/

Supposed to help with burning while voiding and spasms.

Obviously just for symptomatic relief....

dosage is 4 times a day

Great find! Frustratingly, they ask a lot of good rhetorical questions

It seems likely that the COX pathway and pro-inflammatory mediators play, at least, a fundamental role elevating the pain.
I think others have tried Celebrex a COX-2 inhibitor with minimal success

prolongation of pain is ...

Curtis Nickel is still posting bacterial stuff (microbes)? Wow
How does this guy get all the grant money?

Thanks Web, just hearing others had this happen too brings some mental relief. I'll let everyone know how it goes.

Sorry for not linking to my old post threads.

After all these years you are still a beast man, I don't envy you but have a ton of respect for what you do.

I can't believe I am on here posting again, I went through hell with this and finally beat it back 95%.

After 1.5 years of having almost no symptoms in late May I got it back and it is full force right now. I have continued to do PT and meditate since very early on about 4 years ago.

Please can I ...