UCPPS - Prostatitis, Interstitial Cystitis Forum

Hi there now I believe that the more something is irritated or inflamed the more we will fell the pain, so we become protective, and change our habits eg avoid sitting on hard surfaces, then we get caught out when we become complacent.

Hey Cam thanks a lot for the info and the advice it's greatly appreciated as a trip to Sydney takes planing and I don't want to waste it, That's Sherin not Sharon isn't it ? That didn't sound to crash hot, in the respect of not having a manual physio session, did you you have to travel far ? Well ...

I wish to say that my chronic prostatitis / chronic pelvic pain syndrome or PN or how you wish to label it occurred by trauma in my case, so there was no mystery on how my condition occurred, I still believe a very good therapist can give relief with the aid of supplements as well. I do understand ...

I know that Pudendal Neuralgia is a grey area, I do believe the nerve is irritated somehow, But I am a firm believer that GOOD physical therapy and natural anti inflammatory supplements will go a long way, the problem is the lack of very good physical therapists. There is also a place for surgery ...

Yes he is a great man to come out in the open, I just wish with his power, he had opened a special centre for CPPS and continued the research in Australia.

So which test is more diagnostic, and the most accurate, the EMG or the PNMLT? Does it depend on how good or experienced the doctor is, or or can the neurologist stuff it up, or is it best to have both tests ??

Hey there medboy. Yes, I function OK on this amount of Neurontin. I have heard that a few people are on that dosage, the problem is the other drugs, it depends on the amount of pain your in, and it is something that you should discuss with your doctor to be safe. So how do you deal with sitting ? I ...

Hi there I also take neurontin 800mg 3 times a day. Didn't like the Cymbalta [different people different effects]. So did the EMG show anything ?

Yeah there seams to be a few trigger point therapists out there, Now none do internal work is this a criteria in a TP therapist, What is the criteria for a good therapist [besides getting cured ],
Every Therapist reckons they are good and can fix you. :confused:

Can you educate a Therapist as the ...

I have been on antidepressants now for a year, the doctors decided to change my med then increase it, it didn't feel right, so I went back to my old med, then I got really sick, so I was off everything. During my illness I had a realisation, the meds were only masking my true problem. So I saw my ...

Hey Jay, Thanks for your response, Yes I do agree with your input, Now I would like to ask Who is Stacy Futterman ? and Rhonda Kotarinos ?

I'm trying to educate my self and a PT in my area to work on me, it is very difficult :62_58_40: trying to find someone, so I figure that I might have to ...

I thought neuralgia was different to entrapment, I thought that the pudendal nerve was inflamed or something, and entrapment was due to scar tissue trapping the nerve ???

If the medical textbook can't get it right, no wonder there is so much confusion out there, all we want is a solution or a good ...

Yes I have tried blocks and prolo therapy to my lumbosacral nerve roots etc. My SIJ problem come on after the bad physio treatment, HE destabilised my pelvis

I did not cop just banging on the bottom, it felt like a sledge hammer hitting me up through the pelvis

Yes there is A PNE clinic in ...

No you wrong about the jarring of the lower spine being my problem nothing showed up on x-ray or ct etc, my lower back pain is not there now but pain in my genitals is main problem.

Also Vigorously jamming a elbow into your buttocks is not a tweaking latent trigger points. That's not how you do it ...

HI there, now my condition was diagnosed by doctors, this condition of mine, had a cause, and a sudden onset, so may be I should describe my onset.

It occurred 2 years ago, I was working as a volunteer on a prototype rescue vessel, in heavy seas, we turned into the wind, I was sitting at the rear ...