I’ve struggled with UCPPS to the point where it annoys me that autotype doesn’t recognise it. I’ve had this thing for 3 years, it does me daily. But. The times when it’s better coincide with times where my pain is not at the forefront of my mind, it doesn’t define me. I think that’s the mental side ...

@mjh2020. Thanks for all your posts above. All really helpful. I feel like I’m on a similar journey to you. I have been to F-Act earlier this year and found it really helpful. Their feedback was similar for myself. I had a good summer but have relapsed badly since. I got too confident when things ...

Thanks for this post. I’ve been looking at this and I think I might try. Can I ask what dose and do you take it at night? Also why do you think it helps? Any help appreciated. Thanks again.

Just a follow up on this thread. Since June 24 I have been following a regular stretching plan which is a mix of Wise-Anderson and Amy Stein. I also went to F-Act Pelvic Clinic in Holland and they confirmed a lot of my problem stems from imbalances through my pelvic area as a result of life long ...

I donated as a way of thanking you for the excellent advice. Hopefully you see that.

All makes a lot of sense. That’s incredibly useful. Thank you again.

Thank you for your quick reply. It’s very much appreciated.

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My only follow-up is by distinguishing between IC and CPPS do you not help distinguish part of the solution? Ie CPPS more focussed on musculoskeletal stretching and holistic care vs food/drink avoidance ...

Firstly, thank you to all who post here. The site is really helpful in dealing with something where good information is somewhat limited.

I'm 49 years old and have had symptoms for 3 years. My symptoms started after a period of heavier than usual drinking and more sex than perhaps was usual with ...

I’ve been suffering with CPPS for 3 years. I’m sure I also have some IC crossing over it too. Alcohol is my nemesis, really flares my symptoms. I’ve tried to work out a proper reason why for a while and got nowhere until reading this post. Thank you.